Showing posts with label Rainbow Babies and Children's Hospital. Show all posts
Showing posts with label Rainbow Babies and Children's Hospital. Show all posts

Sunday, March 13, 2016

Hello, It's Me...for the first time this year

I write this from a warm home;  cheery lights brighten the kitchen that I'm sitting in.  My family is in the next room, with their small group Bible study- I just finished one homework, and needed to write my thoughts before I begin more homework.
Today has been a long day.  It's not quite over yet.  This week has been long, and it's only Wednesday! This month has been long...I'm really tired.
I haven't posted in a while.  Life has been very busy.  I'm all caught up in college-so excited about that!! But it is not easy.  I'm taking a whopping seventeen credit hours-my most to date.  Classes are very hard, and quite time consuming.  I don't seem to have a free moment to myself, and by Thursday my energy for the week is spent.  But I couldn't be happier.  I'm back with my year-and my wonderful friends (Sara, Jeff, Josh, Kyle and Ean).  I've made a new set of friends, that I think I'm going to keep :) (this means you - Joan, AJ, Ben, Matt, Ryan and Paul) among others.  The amount of homework is incredible, but when I'm sitting in the Mechanical Engineering lab, flanked by the guys I'm proud to call my friends, I couldn't wish for anything more.  So many times in the last few weeks I've stopped, mid-seemingly-impossible-problem, and thanked God for allowing me another chance at life, and for giving me the strength and ability to catch up to them, and to plod through  this semester together.
But sometimes life seems too good to be true.  I strongly believe the saying "If it's too good to be true, it probably isn't true."  Sometimes I worry that all this will be taken away.  That I won't be able to complete senior year with these guys.  I remember my first semester of college, and the amazing time I had.  This semester seems even more incredible than that.  And I remember the heart-wrenching pain of having to drop out second semester.  I'm really scared that it might happen again.  Sometimes I just want to freeze time as is-freeze the happy memories as we snapchat across the classroom, or try to take each other's things, or go to a range, or get Insomnia cookies, or learn about the difference between an '85 and '86 Toyota, or really just do life together.
Last Thursday was rough.  I came of three back-to-back tests.  I do. not.do.well. in back-to-back tests.  Ever.  This time was no exception.  My body ached with the changing weather (#bonemarrowprobs), my shoulder hurt (#heavybackpack), my brain seemed to be on fire (#engineering).  And then I was scrolling on Facebook before class.  And saw a tribute to a woman I met at Cancer Con.  She had a table right next to Rainbow's, and sewed "Survival Organs." Adorable little stuffed things shaped in different tumor and cell shapes.  She had her first baby at Christmas time.  She was the very picture of vitality and happiness, and youth- and suddenly she was gone.  It stung.  The wonderful thing about Cancer Con was meeting so many incredible people.  The horrible thing is that I hurt whenever one of them is gone.
To add to it, a friend I made at the Gathering Place young adult retreat, called saying her cancer had reoccurred for a third time, taking her out of a clinical trial. I know life isn't fair, but sometimes it's really hard to accept how things can go so well for some people, and not for others.  
The minute I was finished with my first round of tests, I had today to deal with.  My first day at Survivor Clinic.  As awesome as it sounds, I was terrified.  I was supposed to be in survivor clinic last year, but instead they found the hemolytic anemia, which triggered an awful steroid regiment.  I dreaded today, and what they may find.  It's really hard for me to differentiate when I'm tired from all the schoolwork, and when there may be something else going on.
Monday night at my campus Bible study, my verse for the night was from John 13:7 "Jesus [said], "What I am doing you do not understand now, but afterward you will understand." It was the best reminder, because right now there is SO much I don't understand.  I have so many questions about all the stuff that has happened/continues to happen to me.  This verse reminded me that Jesus said I won't understand right now.  I don't know when I will understand, but I can be strong in the promise that I will understand.  One of my favorite songs right now is "You Remain" by Saints.  The chorus goes "You are Undeniable.  You are God, and God you are able.  The storm will rise-So let it rise!- because we believe, that you'll remain faithful." This song has been running through my head, and in church, and on Ean's phone, for the last few days.  It has been such a comforting reminder to let the storm rise, because it gives God an opportunity to show himself faithful to me, and the others in my life.
This morning was so hard.  I had two classes, which was a good distraction, but after that I had about 30 minutes to kill before I had to go to Cleveland; blessings on the friend who allowed me to hang on their sleeve the whole time. I didn't want to go.  It took everything I had just to walk down the long hall in ASEC to leave my friends and go to my car.  I literally dragged my feet, as I didn't want to face the unknown.  And God reminded me to let the storm, if any, rise, because He is faithful.  And with that confidence, I was able to go to Cleveland.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Well, I wrote this eleven days ago.  I wanted to find out test results before I posted it, and haven't had a chance yet to do so.  I found out all my tests came back almost normal and I'm thanking God for that.



Thursday, December 24, 2015

A Christmas Memory

Three years ago today I was officially diagnosed with relapsed Hodgkin's lymphoma.  Oncology clinic was only open a half day, and I remember going with my dad that Monday morning.  Even though it was Christmas Eve, life went on as usual at oncology.  I remember them presenting the various chemo options, scheduling a date for surgery for my port, and reviewing my blood work.  I remember hugging my nurse a Merry Christmas, and feeling so overwhelmed as she held me.
           That Christmas Eve, I had just finished my first, absolutely fantastic, semester of college. I had played in a string quartet at a Christmas service.  Presents were wrapped, guests were coming in to spend the holiday, and it seemed a quintessential Christmas celebration.
          But it wasn't.  Through the whole weekend I, and my family, savored every moment. Petty disputes were dismissed, and trivial mishaps ignored.  We were together. For how long, we didn't know.  I don't remember what gift I got, or what gift I gave,  but I remember being there all together.  Through Christmas day, neighbors and friends dropped by, to celebrate Christmas with us.
           Here I am, three years later.  I've just finished my seventh semester of college, and really well for me, all things considered.  I just played a string quartet service with my siblings. The presents are wrapped, and the house is ready for the impending arrival of the guests.  It's easy to get caught up in the hustle and bustle of the holidays.  Dinner guests and engagements, staff meetings and Christmas parties- life is busy. But I don't want to forget what is truly important.  What Christmas is really about.  It's about the birth of a deity, come down to man, to save us from ourselves. God gave his "only begotten son", so that we may have eternal life.
          I think the key word is gave.  God gave, and so should we. Christmas is about giving- maybe giving presents to family, but so much more than just that.  It's about giving love to the unloved. It's about giving cheer to the unhappy. It's about giving kindness to the forgotten.
This Christmas, give outside your normal giving zone.  Maybe you always give to the Salvation Army bell ringer- that's great, but perhaps it's time to go a little beyond that.  Maybe give a gift to a hurting or needy family. Buy some items of a non-profit's Amazon Wish List.  If you're short on the cash, give of your time.  Volunteer at the City Mission or Haven of Rest; cook dinner at the Ronald McDonald House. Walk the dogs at One of a Kind Pet Rescue.  Clean the home of an elderly friend.  Invite a lonely person to share your Christmas dinner.

         The weekend before that Christmas Eve, I had spent in the hospital, following a spleen biopsy.  That was one of my most memorable hospital stays.  I was there technically just for observation, so I was free to roam around.  Rachel stayed with me, and with our reindeer antlers we owned the halls. We made K-cups of Starbucks coffee, ordered all sorts of food, and happily watched Hallmark movies.  It was a special sister weekend, even if it was spent in a hospital.  At that point, I knew the cancer had returned, but didn't know the specifics.  We both knew it was a last hurrah before I would be back in the throws of treatment. And I saw Santa Claus.  I know he isn't real, and I've never believed in him.  But that Christmas, I needed something childish and fantastical to believe in.  Reality was overwhelming, so I entered the magical fairy tale of Santa Claus, and became obsessed with him. My child-life helped me Skype with Santa, a very special memory!
          But I was blessed to be able to be home for Christmas.  There are many who aren't so blessed.  They'll be spending Christmas in a hospital room.  Their four bleak walls bear no Christmas cheer.  They long for the company of their family and friends. Maybe go sing some carols, or take some small Christmas present in a fun wrapping paper. I think this Christmas carol is a fitting end:

Thou didst leave Thy throne and Thy kingly crown,
When Thou camest to earth for me;
But in Bethlehem’s home was there found no room
For Thy holy nativity.

O come to my heart, Lord Jesus,
There is room in my heart for Thee.

This Christmas, may there be room in all our hearts for the reason for Christmas, Jesus.  
Christmas 2012




Friday, June 26, 2015

Dream Night

Hi Friends.  I know I haven't blogged in a while, but tonight was really special and even though I have so many other things I could be doing, I had to share a small bit of it with you.
Life's been crazy.  I'm doing ok...hopefully post more about that later.  I'm in summer classes, so life's been pretty hectic.  Today ended week 3 for me.  I only have two weeks left for my differential equations (diff eq) class, and five weeks left for my other two classes.  Today was really, really long.  The last few weeks, the time has been just right for me to study for my weekly diff eq test, and do a few assignments in my other classes.  However, next week I have two other tests and two other huge homeworks, along with my diff eq test.  I was really starting to stress about how I was going to have time for everything.  Would I be able to complete the work in time; would I be able to comprehend and remember all the material; would I have the strength to make it through another tiring week.  So. many. worrying. questions.
And then tonight happened.  I was at my oncologist Tuesday, and my Child Life Lisa handed me a flier for Dream Night, and suggested I go with the family.  Only Rachel, David, and John were available so I RSVPed for us four, and we went tonight.  it. was. magical.  Just looking at the magnanimity of the event, and all that had been thought of and provided for us, filled my heart to overflowing. I'd like to share a little bit of that magic with you, if I can.
Dream Night was held from 6-8:30, after hours at the Cleveland Metroparks Zoo.  It focus on children with serious medical illnesses or disabilities, and their families.  In the Welcome Plaza were several costumed characters, including a Minion, Tiger, Elsa & Anna, Optimus Prime & Bumblebee, Tinker Bell, Snow White, the Fairy Godmother, and many, many more, along with bubble machines.  Each character was so friendly and welcoming, and posed for pictures.  It was a special treat to see Mr. and Mrs. Webster volunteering there tonight, and their son T.J. as Stripes the Tiger! They have been a huge blessing in my life, and seeing them was a welcome surprise!
















Throughout the zoo, there was ample refreshments.  There were hot dogs for dinner, and concession stands with cotton candy, slushees, popsicles, pretzels, and water bottles! David and John had a blast eating all that sugar! Ben & Jerry's had also opened for the evening, so that was a special treat!













Near the entrance, there was a fire truck, and other large construction trucks that you could explore! Rachel and I were able to climb on the cement mixer.












We were able to go on the Outback Adventure Train, which we have never done! We were also able to go on the carousel. It was so fun to see the joy of kids in wheelchairs as they were able to ride tonight! One girl kept clapping her hands, and her face looked like it would burst with joy! The tram was also running all night.  The tram drivers were so friendly and helpful, making sure everyone was able to get where they wanted to go.





















One of the highlights of our night was getting to see Georgia and Christina Nixon, who we met at the Ronald McDonald House (RMH).  It was really fun to get to hang out with them, and meet several other RMH  residents and end our night together.



Usually I don't enjoy going to the zoo. Walking everywhere, usually in the heat, is quite tiring, and the more tired I am the grumpier I get.  Tonight was special because everything had been planned with the intention of accomodating everyone. Also, God provided a beatufiul temperature, and held of the rain!
Although I am tired, I was able to enjoy the zoo.  For two reasons.  First, the volunteers helped me to enjoy the night.  So many people helped out.  They gave up their Friday night, to dress up in a costume, or serve slushees, or drive a tram.  Each and every one of them had a big smile on, and was eager to assist in any way they could.  If you have the time, volunteer somewhere.  Find a cause you care about, and just give 2 hours out of your week to further that cause.  There is always a need for volunteers, and places are usually willing to train you to best assist them.  If you don't have the time right now, donate money. Dream night was provided at no charge thanks to the generous sponsorship of many organizations.  Whether you give time or money, remember it is more blessed to give, than to receive.
Secondly, everyone seemed to be moving at a more leisurely pace; usually I feel like people at the zoo are trying to take pictures of as many animals as possible, as fast as possible.  Today, it was about enjoying life.  Taking the time to watch the bear get up from behind the tree trunk. Enjoying the tussle of two young kangaroos. STicking out slushee colored tongues. Dancing in the plaza. RUnning after the bubbles.  I think each family there realized that life was a gift. Tonight was a night to enjoy nature, and each other. Life is a gift to us all.  No matter where you are in your life, as long as you have breath, you can find a reason to be grateful.  Take a moment and count your blessings.  Do a random act of kindness, to bless someone else's day.  No matter how hectic life may seem, be grateful you are able to do your work or school or housework.  Somewhere in a hospital is a person wishing that they could worry about work deadlines, school tests, or household messes. But they can't.  They have to worry if they'll have the strength to get out of bed; the energy to cook dinner; or if they will live. So count your blessings, and you will be encouraged.
Well it's pretty late, and I'm pretty tired, so sweet dreams :)




Wednesday, April 15, 2015

An Update and Thoughts


Ahhh....so much has happened in these last few weeks, and I feel like I could write forever and ever! To start with, I know many of you have reached out with kind comments regarding some of my Instagram pics (thank you!), but I know I need to get a proper explanation out to everyone! So to start this story...

*Disclaimer! I wrote this over two days. Some of it right after I got back from the hospital Tuesday, the rest on Wednesday. So please pardon the discontinuities. I feel like once I write something, I can’t go back and make changes (other than grammatical/spelling), so this is the raw stuff, out there for you to read!*

During my spring break, I had my 2-year cancer scans. They all came back clean with no cancer! Thank you Jesus! This was a huge relief to hear. Some other things about the scans though...

·         There was a spot on my liver that had increased in size since the last scans. I had an MRI done last Friday, and as of right now, it is believed to be nothing serious, just growth due to hormone therapy I was on for a lot of last year. I will be following up with GI for this in a few weeks.

·         In addition, I have had a lot of coughing/gagging reflex since this fall, which at first we thought was related to the weather. It does not appear to be related to the weather, however, but possibly an allergy of some sort that coats itself to the esophagus, and so causes that reflex. I will be getting an endoscopy for that, probably after school is over.

The biggest new thing, however, is diagnosis of an autoimmune hemolytic anemia. This is an anemia where the red cells die much faster than they are supposed to. Thankfully, my bone marrow is working overtime to make new cells, but this isn't a sustainable model. I had been feeling very tired and somewhat breathless, as well as had some other enzyme numbers kinda wacky, so everything kinda wraps up into a neat little bundle with this diagnosis. This is a more long-term condition, and I started treatment for it last Friday. The good news is that today's blood test showed that the treatment is working. The bad news is, however, that the treatment is high dose steroids, just a little bit less than what I was taking during active cancer treatments. With the steroids comes the many side effects...some of which are creepy-crawly sensation, hot flashes, loss of concentration, mood swings, headaches, extreme and constant hunger which have all manifested themselves so far. Long-term I am expecting numerous skin troubles, stretch marks, bloating, "snowman" look, and weight gain among other things.

A rather trivial matter, that for me is kinda big, is the weight-gain side effects from steroid. I finally was starting to feel like I was in an OK spot looks/weight wise, and had just started feeling good about myself. I know that the inside appearance is so much more important than the outside, but it still is so hard; the other factor is that this is a long-term treatment, so the end picture is looking bigger…

The biggest overall thing for me about the steroids is that they elevate blood sugars. This would be ok if I was starting at a normal range, but this time I am starting with some pretty high sugars. Currently my sugars are running about 4-5 times what a normal level will be. I am on a long-acting insulin that I shoot every night, and have started shooting insulin before every meal. Hopefully, I will be able to get an insulin pump in the next few weeks.

School has gotten increasingly difficult as well. The anemia symptoms (which I wasn't aware off) definitely affected my second round of tests. Now the steroid treatments looks like it will affect my third round of tests and finals. The steroid concentration issues have really affected me. I can manage to stay engaged 30/50 minutes of most class periods, and then I'm unable to focus! Thankfully, I have some really great professors who are helping me out with these issues!

Some things that I'd really appreciate your prayers...

·         The treatments would continue to work

·         Reduced side-effects from the steroids

·         Ability to finish this semester strong

·         Persistent cough to resolve

·         Sugar numbers to come down

·         Speedy delivery of a pump. A pump will make life so much easier, but it can take on average of 4-6 weeks to get one!

·         Mental strength through get through the treatments and keep checking sugars.

·         A strong finish to a really tough semester.

·         Ability to do well and concentrate on the last round of tests, and final exams the first week of May.

Also on these lines, I had received a scholarship to attend CancerCon, a young adult cancer conference in Denver, which is next weekend. The price of the trip was more than I could afford, but there were a few scholarships offered for it. Also, it is the weekend before the last week of classes-not exactly the ideal traveling time! I applied for some of the scholarships, and asked God if he wanted me to go, that he would bless me with one. I received the scholarship, which covers all expenses, and was beyond thrilled to be going to Denver. However, when speaking with my oncologist and nurse regarding the trip, they were very doubtful if I could go. Given the higher-altitude in Denver, my blood-oxygen levels are not high enough to be there. In addition, I have had a pretty bad persistent cough that is another concerning factor. I would greatly appreciate your prayers that I could go on this trip, if God wills. If my levels continue the current rate at which they are rising, it will reach the necessary threshold of a 10.0 next Wednesday, the day I'm scheduled to leave for Denver.

Well that wraps up the concrete, medical, and practical aspects. Now for the touchy-feely bit…

This unexpected maybe-turn-of-events kinda shook me up. I thought God definitely wanted me to go to Denver since he provided me the money; and then now it looks so uncertain...I was like God, I'd have been fine if you hadn't given me the scholarship because it would have been a definite “No” then. I felt so confused and hurt that God would let me have this incredible and amazing dream trip, and then seemingly/maybe take it away in an instant. As always, God brought a song on the radio to encourage my heart. It was a song that I first heard my first semester of college. I remember the night I heard it. I had gone to see my best friend at ultimate Frisbee practice. Almost everybody I knew or was friends with was on the ultimate Frisbee teams. I wanted to join them so badly. Some evenings we would just casually toss around the Frisbee on the grass behind Honors, and I had pretty decent throwing and catching skills. But I couldn't run. or dive. or jump. I had enough trouble walking, much less playing Frisbee! I wanted to play so badly. To find a club where I could belong. To join people I knew. And then that night I heard "Hold on to the Promises," by Sanctus Real So many encouraging words. When what I wanted so badly I knew wouldn't happen, I knew I was blessed to be alive. I listened to that song so many times through relapse. My sister made a poster that I had in my hospital room, which said "Hold on to the Promises. Jesus is Alive!"

Here are the lyrics:

Sometimes it's hard to keep believing in what you can't see
That everything happens for a reason even the worst life brings
If you're reaching for an answer and you don't know what to pray
Just open up the pages, let His Word be your strength

And hold on to the promises (hold tight)
Hold on to the promises (all right)
Jesus is alive, so hold tight
Hold on to the promises

And all things work for the good of those who love God
He holds back nothing that will heal you, not even His own son
His love is everlasting, His faithfulness unending
Oh, if God is for us who can be against us
So, if you feel weak

Neither life nor death could separate us
From the eternal love of our God who saves us

And then the same song came on the radio as I drove from Cleveland yesterday. And the words again comforted my heart. It is hard to believe that everything that is happening to me is happening for God's reason. I couldn't find the words to speak to God, but like this song says, His Word was my strength. Jesus is Alive! How many religions can say that their founder, teacher, leader and God is ALIVE!

A new line jumped out of this song for me-"He holds back nothing that will heal you, not even his own Son. His love is everlasting, His faithfulness unending. Oh, if God is for us who can be against us!" God will heal me! I don't know if it will be an earthly healing, but I do know that I can remain confident in an eternal healing! Everything will work for good. Sometimes it seems like everything is spinning into an ever-increasing frenzy of "bad things". I just want to be, like God, I've had more than my share of stuff. Sometimes I feel almost abandoned by God. What did I do to deserve all this pain? Why can't even the simple joy of a short trip be dangling ever farther from me?

And then this song. His love is everlasting. His faithfulness unending. The years that the locust of cancer and sickness has eaten away from my life ALL will be restored to me, as only God can. Neither life nor death can separate me from God's vast and immeasurable love. I don't have the words to pray to Him. But I know the words He has for me. Words of hope and a future. I feel so weak, physically, mentally, academically, emotionally. But all I have to do is hold on to the promises.

Last night at The U, Pastor Josh spoke about how we are a message of God's love. A brief paraphrase from 1 Thessoalonians 1-"It is clear to us, friends, that God not only loves you very much but also has put his hand on you for something special...you were able to take great joy from the Holy Spirit! - taking the trouble with the joy, the joy with the trouble...The news of your faith in God is out.". That is my prayer. That the news of my faith will go out. God has put his hand on me for something special. I don't know what. I struggle, just like you do. But I have a Holy Spirit which can and is providing me joy. Joy through sibling-like-friends. Joy through mother-like nurses. Joy through caring and compassionate doctors. Joy through the fellowship of other Christians. Joy unspeakable, such as only God can bring or give. I'm holding on to the promise that the Joy of the Lord is my stregnth.

Holding on to the promises doesn't require strength, and God knows I don't have much stregnth to spare. Words from another Sanctus Real song "Pray" seemed to fit my situation exactly.

I bow my head to pray, I don't know what to say
I'm not sure how to fix the things I'm dealing with
I'm in a desperate place, I need to share the weight
But I just don't know how, to let it all pour out
Though I'm silent, my heart is crying
Cause I was made to come to You

So I pray
God I need You more than words can say
Right here in this moment
You know my heart, You know my need
You know every part of me
So even if it's just to speak Your name
I'm gonna pray

What a comfort. So often I've heard that just ask God for anything you want, as He is a father, and loves me his daughter. But these past few days, I have no words. I have nothing. My heart just feels so full and tired and weary and discouraged and hurt. But I know God is here. And was there yesterday. And will be there for me tomorrow. And is there for you, no matter you’re hurt, or heartache, or body ache, or life situation. Hold on to the promises of God.

And to end, I use the closing words of Madeline. "That's all there is, there isn't any more."



At the new Rainbow Onocology Ward, the day I was diagnosed with Autoimmune Hemolytic Anemia

 

Wednesday, March 18, 2015

2nd BMT Birthday!

So today is my 2-year BMT birthday! I'll share some exciting things that my dear friends have done for me the last few days, but first I'd like to share this picture I took yesterday afternoon. 

 
I was sitting outside the Goodyear Polymer building, waiting for my friends to pick me up. There was a brisk wind blowing, which was almost cold. It lifted my hair, and blew it into my face. I was just so immensely thankful at that instant. This was my own hair. It's been forever since I've had to wipe hair out of my face. I felt the wind, and all around me I was reminded that spring is nearly here. A new season for living things is about to begin.  The greenery is visible once again.  The sky was so. very. beautifully. blue. 
I remembered back to two-years ago; I could only see this teeny little patch of sky, by craning my neck out of the window.  My world had been reduced to four drab walls.  Eventually, when I moved to Seidman I had a gorgeous view of the sky, and could see the sun setting over Cleveland every night.  But I still didn't feel the wind.  The air was always still, always tainted with the nauseating smells of food, or the metallic odors of the medications.  The only movement was the air forced into the room, from a vent atop my bed.  I remember the day I was discharged; even though it was early May, that day was close to 90°F, which to my struggling body was the perfect temperature.  I remember sitting out on the labyrinth in front of Seidman, and just feeling the gentle warm breeze cover my bald head. 
Yesterday was a perfect day.  I have two huge tests this Friday, so by perfect I do not mean easy.  I still had all my classes, got back a quiz, turned in five different homeworks, and studied for my tests.  I think I just felt so thankful for where I was.  Thankful that I had tests to study for.  Thankful that I was able to complete all that homework.  Thankful I had been able to be in class when the pop quiz was given. 
My friends Annie and Jake invited me to grab some food at our friend Cody's house, before our thermo class.  I'm so glad I went with them, and with our friend Craig.  I had my first green eggs, and delicious green waffles.  After class, Annie, Jake and I paused up on the 5th floor, by the window and looked out on the campus.  In that moment I was so thankful that I was flanked by two amazing friends; I had been so scared for thermo, as it is known to be hard, but even more scared to face it without knowing anyone.  Having Annie and Jake with me in that class has just been the most incredible thing, as we study and work together.   



After thermo I headed to my normal Tuesday evening Bible study. I was surprised to see my friend Ean there early, as he normally doesn't arrive till later. But we were just chatting, till Sharon called. As we spoke, I suddenly saw a big bunch of balloons coming down the long hallway, and I knew it was her. She had driven all the way from med school, bearing cupcakes, balloons, and Reese's, to surprise me for my 2-yr! She had been in communication with Ean, who had also notified the Bible study group. In that moment, I was so surprised and overwhelmed by my friends. Two years ago I was friends with Sharon but not very close. I knew Ean, but we weren't really friends. I would never have dreamed that Sharon would be like a sister to me, or that Ean would become such a good friend, or that I would be blessed to have a whole new group of friends through a Bible study!


 Two years ago I remember being in a hospital room. Probably puking my guts out as usual. The chemo for the week prior to my BMT was incredibly hard. Every day they were trying to wipe my entire system clean, and I felt it. I remember thinking about what would happen if the BMT didn't work. There was only a 50% chance that it would. I've met people for whom it hasn't. It was a Sunday then, and I remember wondering if I would ever again be involved in church; would I ever play an offertory again, or accompany a congregation. I remember the team who came to give me my BMT. My PA Linda, and nurse practioner Kristen, plus my oncology floor nurse, and an extra nurse. While Linda and Kristen concerned themselves with the actual administration of the cells, the nurses assisted me, as I was retching like never before, or since. They had wet washcloths, and tried to make me comfortable. My child life Angela was there, and read to my siblings from a book about BMT, and then took them to get snacks, games, and generally kept them occupied.
Two years later I'm sitting in the computer lab as I write this. I just finished three classes this morning. Next to me is Neil, my best friend Sharon's youngest brother. I was so sad to lose her to med school last fall, but Neil has become a close friend and confidante, as we travel the waters of college together, through both the ups and down, joys and sadness in our lives. I'm halfway thorough my halfway semester of college. I'm overwhelmed by how far God has brought me, and his amazing mercy and grace in preserving my life for Him!

 Pictures Milestones
 
BMT


100 Days!


1-yr BMT
 


January 2015