Showing posts with label BMT. Show all posts
Showing posts with label BMT. Show all posts

Saturday, April 16, 2022

Happy Easter 2022!

Happy Easter! I know it's been literal years since I wrote on this blog, but I had thoughts to write, and this felt the most appropriate medium to share. Life update coming at a later time, as I'm toying with reengaging this blog again.  But for now...thoughts on Easter this year. 

My God, my God, why have you forsaken me?

I remember my most desolate Easter weekend. 2013. In-patient for transplant. Confined to the four walls of the hospital room. Saturday was, as usual, empty of most of my family. Christina spent Saturday night with me, but left early Sunday morning for church. My family would come after the morning service. I remember feeling so alone. That day, even the nurses seemed to reduce their frequent stop-ins. Easter is the largest Christian holiday, and it was always a huge celebration at my family’s house. For years, we had many extra guests that would sometimes join for a morning service, but always for a large lunch, games, activities, and a fun day together. Growing up, I often accompanied the large and energetic choir on piano or organ, a joyful anthem to open the service. And that day was so quiet and alone.

My second sad Easter was 2020. Under lock-down, and missing out, once again, on the wonderful celebrations and worship. More recently, I often played keyboard/organ to accompany the packed auditorium for all three services at church. Michayla and I solemnly dyed all the eggs we could find in the fridge various colors, to add a burst of cheer to our fridge in the days to come. We discussed our family traditions, and each made some of our favorite Easter foods to share with each other. Tacos and the livestream service were included. I remember sitting curled in a corner of the couch, feeling as alone as I did seven years back in that hospital room.

This year Easter is once again not as I remember or wish. I have been extended several gracious invites to join for lunch, and am grateful for them. I have been preparing with a choir to sing several beautiful anthems as well as the Hallelujah Chorus tomorrow. Sadly, a bad case of allergies combined with my severely restricted lungs have prohibited me from joining, but I will still worship with them.

Even though I’m not in active cancer treatment anymore, every time I feel alone and tired, I immediately feel triggered to back in my hospital room. Just like then, the weekends still gape emptyingly before me, sitting alone in the silence. Just like then, I find myself with no desire to eat. Just like then, I wonder if I will ever be able to move forward from this space.

Last night I attended Good Friday mass with Mandy. Hearing the story leading up to the crucifixion was incredible, beginning all the way in Isaiah. Hearing how Jesus chose to give up his life. Wow. Would I make that choice? To give my life for ungrateful, stupid, unkind people like myself? It was our infirmities that he bore, our sufferings that he endured. By his stripes, we are healed. Jesus took the guilt of us all upon himself. I was struck by how many times in the reading, it came up “that the Scripture might be fulfilled.” God keeps his word. If he cared enough about seemingly tiny details like broken bones and a drink, he surely cares about the details of my life.

Today I had to drastically cut short my visit with dear Jackie, to attend to an unexpected appointment, and it resulted in another long lonely evening. I cooked some food to take tomorrow, and as is my custom in late-night-cooking, I turned on the playlist made for me by a close friend. And the song the Deep Love of Jesus came on. Underneath me, all around me, is the current of Christ’s love. I was reminded of the story of the author of O Love that will Not Let Me  Go. The loneliness he experienced. The pain. The desolation. Probably feeling somewhat like  me right now. And yet. He had the courage to remember that there is a love so much deeper and sustaining than what our hearts crave here on earth.

I began writing this during Maundy Thursday service while sitting next to Linzi, who’s welcomed me into her row at church weekly, as well as her home and heart on many occasions. God forsook Jesus. He was all alone. Weary. In pain. Sad. Overwhelmed. Feeling the feelings a billion times more than what I’ve struggled with this week.  

I remember the 2013 Easter. No one I knew on earth at that moment understood the pain I was in. And suddenly I realized that Jesus did. He became man to feel our physical and emotional pain. To feel the pressure and crushing responsibilities. To share in the sorrow of loosing people we love. To understand the fatigue of everyday life. And when it seems like not a soul on earth understands what I’m going through today, I’m reminded Jesus does.

Walking along the Charles River last night, Mandy and I reflected on how Easter coincides with spring. All things made new. Fresh life. Growth. But the cheer of springtime doesn’t erase the sadness. Mary wept for her child. The disciples and the women with them grieved the loss of a friend. Believing for the perfect ending and the hope of eternal life doesn’t erase the heaviness of death. The hope of eternal community doesn’t erase the weariness of being alone. The hope of new bodies doesn’t diminish the daily physical pain and accompanying burdens.

He has not forsaken me. He is still here. Because, as Ellie Holcomb said, I’m loved, not because of what I’ve done. Jesus chose me. He sees me. He knows me. Nothing’s gonna change His love. Don’t forget to remember you’re never alone.

“And now, my life will sing the praise, of pure atoning grace. That looked on me and gladly took my place.”

Sunday, April 23, 2017

As If There Was Ever Any Doubt

Several weeks ago, a friend and I were going to a lecture in the evening.  Having some time to spare, and needing to meet our Fitbit step goals, we decided to enjoy the beautiful weather and walk around campus.  As we passed the Union, he reminded me I needed to buy my graduation tassel, and we went to the bookstore. After looking at prices, I decided that I was going to purchase my cap and gown and tassel, right then and there! I picked out the appropriate length gown, grabbed my orange engineering tassel, and paid for my purchases.  One celebratory Starbucks passion tea later, we left the Union to go to the car.  I turned to my friend, and said with purpose, excitement, and wonder “I’m going to graduate!”  I’ll never forget his reply- in a tone of perfect confidence and zero surprise he said, “As if there was ever any doubt, Jen.”
I thought about that- as if there was ever any doubt.  Maybe not for him, but the last 5 years have been filled with doubts for me! Doubts that I would be able strong enough physically to be able to walk and maintain myself through college.  Doubts that I would academically be able to keep up with the course load.  Engineering isn’t easy! Doubts that I would get sick again.  Doubts that anyone would ever hire me, given my medical history.  Doubts that I’d have friends, or people that would stick with me.
But God is greater than those doubts.  Last Sunday, the pastor preached on God’s faithfulness- past, present and future.  And I realized how true that was in my life.  It’s hard to see the good in things, when you’re in the midst of it, but when you reach the other side and look back, it’s beyond incredible to see what God has done.
Faithful you’ve been, and faithful you will be.  So here’s my faithfulness list.
  • I walk to Polsky (our farthest building), twice a week, without coughing like I’m dying.
  • I carry an 18+lb pound backpack
  • I’m in my final 4 classes, and looking to pass them all.
  • I am able to be involved in college, through several different groups, and being able to lead and grow them has just been incredible
  • I just had my 4-years post-transplant, with no evidence of any cancer!
  • I have the most incredible group of friends, who support, celebrate, and encourage me
  • I got a part-time job for the semester, that I was praying and interviewing like crazy for, and suddenly fell in my lap!
  • I get to go to CancerCon again this year! And sneak in a visit to Jo :)
  • I received the ASME Griffith-Collins award, for mechanical engineering seniors
  • I was named one of the Top 10 seniors in the Honors College
  • I have an incredible future-roomie!

I. Got. A. Job. I’ll be starting at F.M. Global this June,  as a Field Consulting Engineer! Side story: this had me kinda worried.  I worked at FM this summer, and loved it.  They're a property insurance company, who use engineers to help prevent risk, rather than other companies who use actuaries to predict risk.  So the field engineers tour the clients' plants/buildings/equipment and look at the fire protection systems, earthquake/tornado/flood hazards and other safety factors and provide recommendations to keep the place safe.  My summer co-op gave me the opportunity to tour a lot of different industry in the area, and also gave me a chance to meet a lot of new people! I loved how each day looked different than the one before, and I really loved FM and the people I worked with.  My two big concerns with it were this: one, being able to last all day.  It's tough walking on a concrete floor, climbing narrow ladders to the roof, and wearing steel-toe boots all day! But I made it through a summer, and I'm trusting God will enable me to last the days of work as well.  The other major concern was my health.  There's a lot to consider if you're going to deal with me! Co-op is one thing- hourly salary, for 12 weeks is manageable.  A regular salary, plus benefits, for an indefinite amount of time is another thing.  But God once again proved that my concerns were no match for him, when I received my offer.  It brought to mind God's promise to bless me with "hope and a future", once again. 
So yeah...that's my story.  Life's still tough.  There's a lot going on right now, that is crazy, and worrisome and horrible and taxing and really stretching me. But then I have to look back on this brief list, and many other things not on this list, and remember that He is faithful!
Closing thought from Standpoint this morning:  Nehemiah 12:43-  And on that day they offered great sacrifices, rejoicing because God had given them great joy. The women and children also rejoiced. The sound of rejoicing in Jerusalem could be heard far away.

God's given me great joy, which will be heard far and near!

Saturday, June 4, 2016

Life More Abundantly

Today is a warm and beautiful day in Akron. It's also the end of a few restful weeks.  On Monday I'll start a co-op with FM Global. I'm excited, and a little bit nervous to be in a new company.
School ended.  I'd like to say it ended well, but that's not quite true.  This semester is known as the hardest for mechanical engineering, and it certainly was.  I took five mechanical engineering classes, and one electrical class.  Funny thing is that most of the mechanical classes were 2 or 3 credits, but you still had the work of a 4 credit class.  I still did pretty well in them, considering.  Also, there's a reason you follow the syllabus schedule-some classes are not meant to be taken together! Basic EE was not fun.  It ended with a not-fun grade, which dragged my GPA way down. But oh well, I passed! This fall will begin my last year of college.  I'm so grateful that God has brought me this far.

The last few weeks between school and co-op have been fun.  I've had a break. I haven't had a break since sophomore year of high school I think! I've always been working when I'm not in school.  And on every spring break or winter break or any other break, I've always been sick.  Finally I've had a few weeks of not-sick, and nothing I have to do! I've been able to Netflix binge (for the first time ever), and sleep in almost every day! I've had a few doctor appointments as well. I've joined a small group from my college group.  It's been awesome to meet a few new faces, and to really get to know these girls better.

The biggest joy these past few weeks have been my friends.  It kinda started with graduation.  All my biology friends graduate this year, as well as a number of engineering friends who were either a year ahead of me, or completed the program in four years.  A friend had an extra ticket, that she was gracious enough to share with me, so I was able to attend the engineering graduation, and see a lot of friends afterward.  It seems unreal that that will be me in less than a year! It was such a nice time taking pictures and celebrating with them.  The freedom of no schedule has allowed me to join impromptu gatherings, like Applebee's with Noelle and Dom, or crashing with Heather after her birthday party, or making pepperoni rolls with Noelle, or West Side Market with Heather and Noelle, accompanied by an Ohio City tour, and glass blowing demo, or just hanging out with friends at the U after service, or Asian market shopping with AJ, or Mary Kay with Brittany, packing and dinner with Sara, Ronald McDonald dinners with Joan and Hanneh, or so many other things! Even just texting friends and snapchatting them has been fun.

Yesterday Noelle and I were talking about when we first met the different people in our mutual friend group.  I realized just how many people God has brought into my life. And there's a whole different group just in my major!  I'm so grateful for the boys who've taken me in, and have supported and helped me, especially through this rough semester.  Having these guys to do homework with, compare homework with, share notes, work on projects, unexpectedly see in the lab on Saturdays, get Penn Station on said Saturday, sprint to Panda Express with, steal stuff out of a friend's backpack, go to the hospital with said friend, reveal test scores together, share Pizza Fire in the basement of ASEC while studying Basic EE, crowd into an over-filled tutoring room to learn said Basic EE, so. many. memories.

The past few years I haven't had this group.  I've been on my own. I struggle through homework on my own, praying that Google would help me. I ate by myself. I didn't even go into the lab, because I didn't have a buddy to "watch my stuff". I felt so alone in my major, as I watched everyone around me chat and laugh with their little groups.  Now I have a group.  Not just one group, either.  Everyone is split into their little groups, but they've all reached out an arm to me.  It's funny, every class I sat with a different group! How many past classes I've sat all alone, listening to everyone else, just absorbing and never participating.  Now I'm included in conversations; I'm included in lunch invitations; I'm included in project groups.

I'm so grateful for this break, and for this last semester.  It was a really difficult semester, but it's over now.   I'll be entering my final year of college this fall.  It seems unreal; I never thought I would make it this far. One verse I've always quoted to my friend and myself is "Faithful is He who calls you, and He also will bring it to pass." from 1 Thessalonians 5:24. God has been so faithful to me this semester, and through college.  My other main verse is Jeremiah 22:11- For I know the plans I have for you," declares the LORD, "plans to prosper you and not to harm you, plans to give you hope and a future. I've always believed the promises in that verse, but sometimes it seems like I'm not prospering.  Ending this semester has really given me the feeling of hope, and of a future.  I know I should believe in faith, but sometimes it is really nice to have a tangible proof that God is keeping his word! 

And to close, one of my latest favorite songs that's gotten me through a lot of tough days recently-
Diamonds-by Hawk Nelson
Here and now I'm in the fire,
In above my head
Oh, oh, oh oh, oh, oh
Being held under the pressure,
Don't know what'll be left
Oh, oh, oh oh, oh, oh
But it's here in the ashes
I'm finding treasure

He's making diamonds, diamonds
Making diamonds out of dust
He is refining in his timing
He's making diamonds out of us

I'll surrender to the power
Of being crushed by love
Oh, oh, oh oh, oh, oh
Till the beauty that was hidden
Isn't covered up
Oh, oh, oh oh, oh, oh
Oh it's not what I hoped for
It's something much better

Oh the joy of the lord
It will be my strength
When the pressure is on
He's making diamonds

He's making diamonds, diamonds
Making us rise up from the dust
He is refining in his timing
He's making diamonds out of dust
Making diamonds out of us

I won't be afraid to shine
I won't be afraid to shine
I won't be afraid to shine
Cause he's making diamonds out of dust
Making diamonds out of us

Wednesday, March 18, 2015

2nd BMT Birthday!

So today is my 2-year BMT birthday! I'll share some exciting things that my dear friends have done for me the last few days, but first I'd like to share this picture I took yesterday afternoon. 

 
I was sitting outside the Goodyear Polymer building, waiting for my friends to pick me up. There was a brisk wind blowing, which was almost cold. It lifted my hair, and blew it into my face. I was just so immensely thankful at that instant. This was my own hair. It's been forever since I've had to wipe hair out of my face. I felt the wind, and all around me I was reminded that spring is nearly here. A new season for living things is about to begin.  The greenery is visible once again.  The sky was so. very. beautifully. blue. 
I remembered back to two-years ago; I could only see this teeny little patch of sky, by craning my neck out of the window.  My world had been reduced to four drab walls.  Eventually, when I moved to Seidman I had a gorgeous view of the sky, and could see the sun setting over Cleveland every night.  But I still didn't feel the wind.  The air was always still, always tainted with the nauseating smells of food, or the metallic odors of the medications.  The only movement was the air forced into the room, from a vent atop my bed.  I remember the day I was discharged; even though it was early May, that day was close to 90°F, which to my struggling body was the perfect temperature.  I remember sitting out on the labyrinth in front of Seidman, and just feeling the gentle warm breeze cover my bald head. 
Yesterday was a perfect day.  I have two huge tests this Friday, so by perfect I do not mean easy.  I still had all my classes, got back a quiz, turned in five different homeworks, and studied for my tests.  I think I just felt so thankful for where I was.  Thankful that I had tests to study for.  Thankful that I was able to complete all that homework.  Thankful I had been able to be in class when the pop quiz was given. 
My friends Annie and Jake invited me to grab some food at our friend Cody's house, before our thermo class.  I'm so glad I went with them, and with our friend Craig.  I had my first green eggs, and delicious green waffles.  After class, Annie, Jake and I paused up on the 5th floor, by the window and looked out on the campus.  In that moment I was so thankful that I was flanked by two amazing friends; I had been so scared for thermo, as it is known to be hard, but even more scared to face it without knowing anyone.  Having Annie and Jake with me in that class has just been the most incredible thing, as we study and work together.   



After thermo I headed to my normal Tuesday evening Bible study. I was surprised to see my friend Ean there early, as he normally doesn't arrive till later. But we were just chatting, till Sharon called. As we spoke, I suddenly saw a big bunch of balloons coming down the long hallway, and I knew it was her. She had driven all the way from med school, bearing cupcakes, balloons, and Reese's, to surprise me for my 2-yr! She had been in communication with Ean, who had also notified the Bible study group. In that moment, I was so surprised and overwhelmed by my friends. Two years ago I was friends with Sharon but not very close. I knew Ean, but we weren't really friends. I would never have dreamed that Sharon would be like a sister to me, or that Ean would become such a good friend, or that I would be blessed to have a whole new group of friends through a Bible study!


 Two years ago I remember being in a hospital room. Probably puking my guts out as usual. The chemo for the week prior to my BMT was incredibly hard. Every day they were trying to wipe my entire system clean, and I felt it. I remember thinking about what would happen if the BMT didn't work. There was only a 50% chance that it would. I've met people for whom it hasn't. It was a Sunday then, and I remember wondering if I would ever again be involved in church; would I ever play an offertory again, or accompany a congregation. I remember the team who came to give me my BMT. My PA Linda, and nurse practioner Kristen, plus my oncology floor nurse, and an extra nurse. While Linda and Kristen concerned themselves with the actual administration of the cells, the nurses assisted me, as I was retching like never before, or since. They had wet washcloths, and tried to make me comfortable. My child life Angela was there, and read to my siblings from a book about BMT, and then took them to get snacks, games, and generally kept them occupied.
Two years later I'm sitting in the computer lab as I write this. I just finished three classes this morning. Next to me is Neil, my best friend Sharon's youngest brother. I was so sad to lose her to med school last fall, but Neil has become a close friend and confidante, as we travel the waters of college together, through both the ups and down, joys and sadness in our lives. I'm halfway thorough my halfway semester of college. I'm overwhelmed by how far God has brought me, and his amazing mercy and grace in preserving my life for Him!

 Pictures Milestones
 
BMT


100 Days!


1-yr BMT
 


January 2015