Sunday, September 1, 2013


Hello All!! It's been a while since we updated, and a lot has happened since!!

So here's a quick update beginning from my admissions to the PICU.  I was coughing and couldn't breathe, which led to chest x-ray and eventually admitted to the PICU. While there were many theories as to why I was having trouble breathing, the final consensus led to chemo induced pneumonitis.  Certain chemo meds, which I was on for my BMT, can lead to pneumonia like symptoms.
I am on a treatment regime which consists of taking Bactrim (a pneumonia preventing antibiotic) every 6 hours for three weeks.  I'm also on steroids, and just finished a broad spectrum antibiotic.
Moving forward healthwise...I am seeing a pulmonologist this Tuesday.  I will also be following up with my oncology team on the 9th.  I still have greatly reduced lung function and support, and get tired rather quickly.

Thank you all so much for your prayers, notes, and acts of kindness.  It was nothing short of a miracle from God that I was able to leave the ICU when I did, and return home that quickly.

I ask for your continued prayers as I started college this past week.  It is a bit of a challenge to juggle the work with my health and doctor appointments across town, but I know that this is where God wants me. I have been incredibly blessed with understand professors who are being helpful to accomodate my needs. These verses from Isaiah 40 reflect what I've felt these past two weeks:

Hast thou not heard, that the everlasting God, the LORD, the Creator of the ends of the earth, fainteth not, neither is weary?  He giveth power to the faint; and to them that have no might he increaseth strength. Even the youths shall faint and be weary, and the young men shall utterly fall: But they that wait upon the LORD shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint.

Here is a song that was an incredible blessing to me in the ICU, as it accurately summed up what I often felt.


We pray for blessings, we pray for peace
Comfort for family, protection while we sleep
We pray for healing, for prosperity
We pray for Your mighty hand to ease our suffering
And all the while, You hear each spoken need
Yet love us way too much to give us lesser things

We pray for wisdom, Your voice to hear
We cry in anger when we cannot feel You near
We doubt your goodness, we doubt your love
As if every promise from Your word is not enough
And all the while, You hear each desperate plea
And long that we'd have faith to believe

When friends betray us
When darkness seems to win
We know that pain reminds this heart
That this is not,
This is not our home
It's not our home

What if my greatest disappointments or the aching of this life
Is the revealing of a greater thirst this world can't satisfy
What if trials of this life
The rain, the storms, the hardest nights
Are your mercies in disguise

'Cause what if your blessings come through rain drops

What if Your healing comes through tears
What if a thousand sleepless nights are what it takes to know You're near
What if trials of this life are Your mercies in disguise

Here are some pictures from the past few weeks!
ICU rooms aren't designed for mobile patients...hence the closeted toilet which swivels out! 

Attached to an IV pole...again

When did they take that?!

What can I say?

So the band around my chest was connected to a machine which vigorously shook me for 20 minutes every four hours.  The idea behind it was to loosen any particles in my lungs.  Everyone thought it was hilarious.

The mask shown in the previous picture is what I was constantly on.  It's called a CPAP.  It forces air into your lungs, which can be really uncomfortable and pushes down on your face.  The padding shown in this picture was to relive some of the pressure of the mask.  

Finally well enough to walk again! Going around the unit with Child Life Lisa! 

This is in the oncology ward, the day I was released.  It is customary to sign your handprint when you are done with your treatments and leave oncology.  However, when I ended my treatments, I was released from Seidman Cancer Center, due to the water trouble issues.  As a result, I never got to sign my handprint then, but I did now.  Hopefully I will never again have to be admitted to that ward.  Mine is the purple hand on the right! 

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